Wednesday, December 06, 2006

Evening

This is a good site: http://www.angiomaalliance.org/cainfo.html Mark's cavernoma is located in the mid-brain, which is part of the brain stem.

Hey! How about some better news? Mark still has some swelling but his MRI came back with no signs of a stroke. His fever is down but he's still wearing a cooling blanket. This is a great invention to those of us with hot flashes, but I'm sure Mark is hating every minute of it.

I called my old friend Patty Walsh who works at Jefferson. She pulled a few strings and two very important looking Patient Advocates arrived within the hour and escorted me to a conference room. All eyes were on us, walking down the hall to Mark's room like a senior mod squad. I think it brought the fear of god to the nurses station. They gave me a lot of good information and the day got better from there.

During our six o'clock visit, the nurse repeatedly told Mark to wake up. After a few times, she said "wake up, Chris is here" and he did. He stayed awake (as well as he could) for the entire half hour. I asked him if he understood what I was saying and he opened his eyes wide - that's our sign. Later, during the eight o'clock visit, his nurse asked the same old questions, wiggle your toes, give me two fingers, give me a thumbs up. Well, he wiggled his toes and fingers of his right hand, but more importantly, for the first time in days, he was able to do the same, although weaker, on his left side.

Mark's attending physician he said that he may have some visual imparement, but he's hoping for more progress in the coming days.

I know this has happend before, but I'm going to get just as damned excited as I did all the other times. Hope you all do too.

Damon and Derrek, people have been asking how this all started, and I'd like you guys to write the beginning of the story. They're the ones who actually saved Mark's life and got him to the emergency room.

Chris

4 comments:

Anonymous said...

Chris -

Thanks so much for the update. And Damon and Derek, thank you guys so much for the quick thinking.

A reminder to everyone reading the blog, if you're not familiar with things - you may have to hit "refresh" (F5 on PCs, or Ctrl-Shift-R, or whatever the Mac equivalent is) in order to see the most recent version of this page. I was getting concerned about the lack of update when I finally remembered to do this myself.

Mark -

There ya go! More, please. Waiting impatiently along with everyone else for the grouchy guy with the heart of gold.

-Kat (with Ben alongside)

Anonymous said...

Chris, we're heading out of town for a show in Tucson AZ, and we'll be returning late Monday night.
We're thinking of you and of course Mark all the time.
Hoping for good news on the blog on our return.
Bless you for all you're doing
Much Love
Celeste

Anonymous said...

Chris,

Yee Haw, as we say here in Texas. I'm going to get excited right along with you girl! Thanks for the good news. Sounds like the nurses need to invoke your name more with Mark - your name apparently has power with him. Duh. "Mark, Chris brought some pasta." "Mark, Chris is naked!"

I'm curious which fingers Mark held up. Can you enlighten us?

Anonymous said...

It was good to fire up the computer and read some encouraging news. Cudos on putting the med staff in their place. Tell Mark he is missing some great Louisiana political stuff: FEMA squandering billions, Dems and Repubs fighting over offshore royalties, the Governor's big money give away being shut down. The Imedded Reporter from New Orleans needs to file a story!